I am safely in India, with my friend. I was unable to speak for around 36 hours, however an autism "sunflower" lanyard was remarkably well-respected and got me through with no stress of any kind. people were astonishingly helpful and kind.
Helen I remain available to back you (and community) up, to get the EOMA68-A20 testing completed. emphasis as always is and will always remain on "community", for which I will always be grateful for everyone's help over the years.
l.