On Mon, Dec 2, 2024 at 6:01 AM lkcl luke.leighton@gmail.com wrote:
[this is long]
I don't think they're going to help you, Luke, I'm sorry. Usually that kind of 'form letter' message gets sent when they aren't willing to touch you for some reason -- at least that's my experience here in America. I can tell you that here it's utterly impossible to find competent care, at least in many states -- doctors will just string you along and if you complain, they find ways of making it your problem and not theirs.I've been neglected that way for over ten years by now not one but TWO major healthcare networks here in North Carolina, of which one you've heard of pretty much no matter where you live, either by way of international medicine or by way of international sports.
Unfortunately, all I have is sympathy/empathy and the sort of affirmations that go along with it. I wish I could get care as effective as your NIH -- my mental health is, ironically, more-or-less managed fine; it's all physical stuff for me, really -- I'm on the ragged edge, sure, but it's because I can hardly walk far enough to answer my own front door, and can't get any sort of meaningful pain management even though I have some sort of chronic pain disorder (which I also can't get diagnosed) and essentially zero physical pain tolerance. My docs are basically just sitting back and waiting for me to die.